A tweet by fa3rygirl came to my attention recently. I recognized the name but had not seen her on fan sites for awhile. Her name is Sheila Roposa, a fan I had met a few times at concerts.
She is most memorable to me because of the compassion she showed to a young man named Michael. His dream was to attend a concert and meet David Archuleta. He was ill with cancer and had to be in a wheelchair. Not only did she get Michael to the show in Northhampton, MA, but she made sure he got to meet David backstage. This was not a simple task because there were 12 inches of snow on the ground. I will never forget the picture of David reaching out to Michael to say hello.
Sheila was tweeting about a GoFundMe page her family had set up. It is a crowdfunding platform that allows people to raise money for events ranging from life events such as celebrations and graduations to challenging circumstances like accidents and illnesses. The company is based in San Diego, California. I clicked the link and read the story about how her daughter, Tiffany, was ill with Lyme disease. I came away with the feeling that this was nothing short of a tragedy. My heart went out to Tiffany and her family. It’s a helpless feeling when you are told that there isn’t any coverage for medicine that is desperately needed. I knew I had to do something to help spread the word about a GoFundMe page set up to raise funds for Tiffany’s medical costs.
My hope is that Tiffany will get what she needs to get her life back. By sharing her story I hope to raise awareness about Lyme disease.
Credit for all photos: Sheila Roposa
A message from Sheila:
My name is Sheila. My 15-year-old daughter Tiffany was bitten by a tick infected by Lyme Disease and several other infections two years ago. Her doctor at the time did not recognize the bulls eye rash and Tiffany went one year without any treatment while the Lyme Disease progressed.
Tiffany started taking antibiotics two years ago. Due to the infection being in her nervous system, brain, and heart, she has needed extended treatment, including IV antibiotics.
Recently she was placed on a PICC line, which is an IV line for antibiotics. Our health insurance would only cover one month of treatment. Tiffany started to improve once on the IV line, which is the only time in two years she had this much improvement, but due to insurance guidelines that only cover one month of treatment, the IV line was pulled today. We are setting up this account to try to get some funding to pay for Tiffany’s medical bills and additional time on the IV line.
Before getting sick, Tiffany was an active girl that played soccer and rode horses. For the last two years, Tiffany has been severely ill. She has been out of school with home tutoring as she can’t walk or sit in a classroom. She is bedridden a lot of the time. She has had numerous ER visits, doctor visits, hospitalizations, and sees several specialists for her brain and heart. She’s lost weight, had periods of paralysis, seizures, lost all her hair, has fluid around her heart, developed autoimmune disease, and countless other complications. She’s missing out on life.
We want Tiffany to be able to receive this treatment to get her life back. If you can, please consider donating. Any amount, no matter how small, will help. If you can’t donate (we understand not everyone is in the position to), please share this link with everyone you know and ask them to pass it on. http://www.gofundme.com/tiffanylymefund#
Update May 20, 2015
Hi, thank you everyone for all your help. We have now been able to schedule Tiffany an appointment with the Lyme Center of New England, which is a private facility. They will be able to further help her and maybe get her IV back in. We found out just with one medicine that her IV out of pocket will cost us $2,000 a month so we increased the goal, but we do now have enough to get things started, so thank you! Tiffany is feeling pretty sick still. She lost her hair again, but she’s handling it well. A neighbor and friend had her a wig made and people from the community donated to pay for it. So thank you to everyone for that also. We are very blessed. Sharing with everyone you know will help us so much. We’ve received donations from family and friends of people we know, so it does work! Thank you again to everyone.
If you would like to learn more about Lyme Disease, please visit http://www.ilads.org/